Posts Tagged ‘Patient-focus

The FDA hearing on social media took place almost a month ago already and a lof of ink (or pixel for that matter) has flown since on what was presented. I vividly encourage you to dig through the sources on Fabio Gratton’s excellent #fdasm site to paint your own picture of the content.
In my simplitic [...]

Researching the latest EU commission view point on social media, I came across this very upsetting conclusion from a review on the state of patient information in Europe:

Today huge inequalities exist in terms of availability and accessibility of information between different population groups and between EU member states.
Health related websites are amongst most frequently visited [...]

Exactly 20 years ago today, one of the most horrific monuments of the cold war came down: the Berlin wall.
I remember strolling through East and West Berlin some days after the fall and hearing a reporter say: “Everyone who is not dead, is walking the streets of Berlin right now.” And it surely felt this [...]

Jon over at dose of digital just wrote a great post asking Can Social Media Improve Your Health or Change Your Life?
“Of course it can!“ was my immediate thought, followed by a rush of utter frustration: “Why do you still need to explain this to people?“
As I was biking along the foggy path lining [...]

Lately, I witnessed the start of a fascinating dialog between pharma, medical device companies and diabetes bloggers. Roche, for example, just sponsored the first diabetes blog summit bringing together the most influential diabetes bloggers and online community leaders, in order to identify avenues for collaboration. zw4qg6bvya
TuDiabetes, a diabetes online community of over 10,000 members, has [...]

Last Friday, I asked you to recommend your favourite pharma twitter accounts under the #followpharma hashtag. I promised that in return for your participation, I would summarize, analyze and consolidate all recommendations.
Your participation was incredible! In just one day, you recommended 249 accounts (or 131 excluding all double counting) from 11 countries that pharma should [...]

A fascinating discussion popped-up today around strategies and tactics that pharma should use to engage with social media.
Johnathan over at dose of digital started this discussion with this list of interesting tactics that pharma should explore. He got fed up with pharma shuffeling their feet not daring to dip their toe into the cold, rough [...]

Patientslikeme announced last week: “ a pilot program in our multiple sclerosis community which helps patients submit treatment-related adverse events directly to the The U.S. Food and Drug Administration (FDA) through our site“.
This got me wondering: what will the impact be on adverse event reporting overall?  how much of an increase in total adverse events [...]

I just came across the MyMSmyway site. This site provides technology solutions to people with MS to help them with the challenges to their vision, cognition or dexterity that MS can create. It was created out of a collaboration between Bayer Healthcare, Microsoft and the National MS society and originated from a survey of 2,390 [...]

From discussions with folks in several pharma companies last week, I got the feeling that the business case for social media has become very clear to most companies (also see Impactiviti article outlining this quiet nicely). Therefore engaging with social media has found its way into most of the big pharma companies strategic initiatives this [...]


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The Internet holds the power to profoundly change the way healthcare is delivered. Millions of patients, caregivers and physicians turn to the Internet every day to look up the latest information on important health topics and find support from like-minded people.

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