Archive for the ‘Patient-focus’ Category

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The white elephant in the room: the FDA hearing and DTC

In: Patient-focus| Regulations| strategy| twitter

6 déc 2009

The FDA hearing on social media took place almost a month ago already and a lof of ink (or pixel for that matter) has flown since on what was presented. I vividly encourage you to dig through the sources on Fabio Gratton’s excellent #fdasm site to paint your own picture of the content.
In my simplitic [...]

Europe- you need to tackle social media now!

In: #hcsmeu| Access| Awareness| EU policy| Patient-focus| Regulations| Social media tools| government| strategy

10 nov 2009

Researching the latest EU commission view point on social media, I came across this very upsetting conclusion from a review on the state of patient information in Europe:

Today huge inequalities exist in terms of availability and accessibility of information between different population groups and between EU member states.
Health related websites are amongst most frequently visited [...]

FDA hearing on social media- The first hole in the wall?

In: #hcsmeu| Access| Awareness| Patient-focus| Regulations| government

9 nov 2009

Exactly 20 years ago today, one of the most horrific monuments of the cold war came down: the Berlin wall.
I remember strolling through East and West Berlin some days after the fall and hearing a reporter say: “Everyone who is not dead, is walking the streets of Berlin right now.” And it surely felt this [...]

Confessions of a European health consumer

In: Access| Awareness| Online community| Patient-focus| Regulations

9 oct 2009

Today, I was looking for information for my Dad who is a type 2 diabetic. I was interested to see, if a certain type of insulin could control his diabetes better. Naturally, I went online and typed the product in question into Google. The site that came up was the American product site. There [...]

Pharma and the patient blogger: why and how to engage

In: Online community| Patient-focus| strategy

27 juil 2009

Lately, I witnessed the start of a fascinating dialog between pharma, medical device companies and diabetes bloggers. Roche, for example, just sponsored the first diabetes blog summit bringing together the most influential diabetes bloggers and online community leaders, in order to identify avenues for collaboration. zw4qg6bvya
TuDiabetes, a diabetes online community of over 10,000 members, has [...]

Follow the engagement- visualizing #followpharma

In: Patient-focus| Social media tools| twitter

21 juil 2009

Last Friday, I asked you to recommend your favourite pharma twitter accounts under the #followpharma hashtag. I promised that in return for your participation, I would summarize, analyze and consolidate all recommendations.
Your participation was incredible! In just one day, you recommended 249 accounts (or 131 excluding all double counting) from 11 countries that pharma should [...]

You do not need one social media strategy, you need many

In: Online community| Patient-focus| Social media tools| strategy

5 juin 2009

A fascinating discussion popped-up today around strategies and tactics that pharma should use to engage with social media.
Johnathan over at dose of digital started this discussion with this list of interesting tactics that pharma should explore. He got fed up with pharma shuffeling their feet not daring to dip their toe into the cold, rough [...]

MyMSmyway- bringing technology to patients

In: Patient-focus| Social media tools

5 avr 2009

I just came across the MyMSmyway site. This site provides technology solutions to people with MS to help them with the challenges to their vision, cognition or dexterity that MS can create. It was created out of a collaboration between Bayer Healthcare, Microsoft and the National MS society and originated from a survey of 2,390 [...]

Ask not what social media can do for you — ask what you can do for social media

In: Online community| Patient-focus

30 mar 2009

From discussions with folks in several pharma companies last week, I got the feeling that the business case for social media has become very clear to most companies (also see Impactiviti article outlining this quiet nicely). Therefore engaging with social media has found its way into most of the big pharma companies strategic initiatives this [...]

I believe online communities increase adherence to treatment - do you?

In: Adherence| Online community| Patient-focus

18 mar 2009

Adherence is a behavior that is driven by a positive frame of mind. It is the decision to take your medicine as your doctor told to, because you believe it will improve your health. It is also an act that implies that you care about your health and well being.
I believe that participation in social [...]


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The Internet holds the power to profoundly change the way healthcare is delivered. Millions of patients, caregivers and physicians turn to the Internet every day to look up the latest information on important health topics and find support from like-minded people.

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  • Kwai Yu: Hi Silja, Cherie sent me a quick note about you ... no wonder she said you were amazing :-) I [...]
  • Evaluating Pharmaceutical Twitter Accounts | PRforPharma: [...] compare to so-called best practices for Twitter engagement.  WhyDotPharma has already conduct [...]
  • Tammy: I enjoyed your posting. Especially the part about the, BOGSAT’s syndrom: Bunch Of Guys Sitting Aro [...]
  • Sabine: Hi Silja, my guess is: about 5 Mio Very interesting and helpful findings there - curious to se [...]
  • R.J. Lewis: Nice analysis! Nice to see someone is tracking pharma's activity. Perhaps you should set up an ann [...]

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