Very exciting initiative by the NHS, with their recently released beta version on nhsunlocked, ratings and advice from patients.
The site offers hospital center ratings and groups by disease area. That by itself is not so innovative, you might correctly remark. What got me excited is the collaborative spirit in which the site was set up.
Their Hepatitis C, Muscular Dystrophy and Progressive Supranuclear Palsy groups all partner with existing patient advocacy groups and campaigns. There are official links to leading patient blogs and online community, like for example Ron Metcalfe’s Living without HepC which features a great patient testimony on the interferon treatment journey or the patientslikeme PSP community. The also link to another of my favorite rare disease and social media projects, action duchenne.
This is, to my knowledge, the first time an official European government agency openly endorses links to “grass root“ patient online communities. You can feel, the NHS really did their homework in identifying the most reliable, influential and valuable internet resources for patients. And this regardless of whether it is a UK or other English-speaking site!
Great initiative, you guys from the NHS! Any interest in collaborating with pharma on some of these initiatives?
By the way, you can also follow the NHS on twitter